The confusing loneliness of the tediousness of illness
Today I get to hear the news I already know, a brain surgery sits on the horizon.
Today I get to hear the news I already know, a brain surgery sits on the horizon.
The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]
Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]
It was just one week ago I found myself numb in the car, unsure how to scrape my way out of my latest predicament. By Wednesday my perspective had changed and by Friday I felt like an entirely different person. Not healed, not new, just different. You see last weekend I embraced the moment of […]
Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]
It was my first morning home from the hospital that I noticed it. A barely there drop of spinal fluid that shot out as I exhaled and sat up. “Aw crap” I thought to myself as I rummaged through the bag of undies and post-surgical instructions I had brought back from the hospital with me. […]
For a while I was writing every day, exploring the inner most avenues of my heart as I navigated a path towards healing (whatever that means). It was something that kept me going, to write it down was to begin to deal with the ongoing ordeal of living with Herbert, or Flo, or really, any […]
My thoughts are meandering, so bear that in mind, this post discreetly calls upon so much of what happens in my days without detail or justice to any one moment. It is often those things that we imagine that get us through those things that we are actually facing. For example when I have a […]
I’ve never been that great at being alone. I mean, I live alone and truly I thrive in certain ways, but I’ve never been great at those times where I have extended periods to strategize and coordinate for myself. It’s why writing a dissertation, when I really get down to it, will be a rough […]
I don’t write everyday. Some days it’s hard to know what to say. Some days it’s hard to know what to do other than sit and stare and wait for energy, or motivation, or some kind of return to who I was or who I see myself as. Some days I spend the whole day […]