The confusing loneliness of the tediousness of illness

Today I get to hear the news I already know, a brain surgery sits on the horizon.

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Why I write

The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]

Update scmupdate

Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]

Like a yo-yo

Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]

Update on a piss poor attitude and a desire to be a bit less haggard than I am

It was my first morning home from the hospital that I noticed it. A barely there drop of spinal fluid that shot out as I exhaled and sat up. “Aw crap” I thought to myself as I rummaged through the bag of undies and post-surgical instructions I had brought back from the hospital with me. […]

What is there to say

For a while I was writing every day, exploring the inner most avenues of my heart as I navigated a path towards healing (whatever that means). It was something that kept me going, to write it down was to begin to deal with the ongoing ordeal of living with Herbert, or Flo, or really, any […]

Imagine

My thoughts are meandering, so bear that in mind, this post discreetly calls upon so much of what happens in my days without detail or justice to any one moment. It is often those things that we imagine that get us through those things that we are actually facing. For example when I have a […]

Snow

I’ve never been that great at being alone. I mean, I live alone and truly I thrive in certain ways, but I’ve never been great at those times where I have extended periods to strategize and coordinate for myself. It’s why writing a dissertation, when I really get down to it, will be a rough […]