Transition

I haven’t written here in a while. I just stopped wanting to write about my health because it became something that was too big for me to put into words. The constant fear that I kept at bay through a careful maintenance of “fight or flight” mode slowly started to collapse around me. I also […]

3 months

On Friday it will have been 3 months since what was hopefully the last of many brain surgeries.While I am quietly hopeful at the thought of resolution, it is not easy for me to inhabit my skin, this body, or this world with this new news. While everyone acknowledges alongside me that this will be […]

Number Ten

I was doing great. I was upbeat, I was present, I think you could even have called me peppy for a bit. I was unphased by my 10th brain surgery (11th surgery overall). I was singing Jason Mraz’s “Everything is Sound,” and taking the uncertain and unwritten future as a reason to stay firmly in […]

In defense of trying: redefining thriving for a new body

I figured something out about myself. I’ve stayed, in a way, frozen to a version of myself. I used to think I was stuck in a protracted childhood because my tumor caused me to regress, but then I was like, mehhhhhhhh, that sounds like a lot of psychoanalytical pucky. But I knew I was stuck. […]

Update scmupdate

Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]

“Samira eats her words day”

Today was supposed to be the day that the doctors used their most accurate test to prove me wrong. I think it’s called a radio nuclear cisternogram. They were going to put a scary needle in my back, fill me with some kind of magical, radio-active, glow in the dark potion, and track my CSF. […]

I’m goddamn f&%king miserable

I guess life is about expectations. If you set yourself up for success or failure by believing a certain outcome is imminent, if it doesn’t turn out how you anticipated you end up, well – disappointed. That’s why hope is such a dangerous thing. A beautiful thing, but a dangerous thing.  Usually when you start […]

What happened

While social media tends to fill in the gaps of the big moments of our lives a few people have asked what happened so I figured I could write it down here for you. Here’s what happened: I woke up January 8th with a tinge of nausea and a not quite rested head. I washed […]