Update for updates sake, so you’re not offended by my silence 

Since my last post many of you have reached out to me with you empathy, friendship and solidarity. I am so grateful. I am also lost for words. I don’t know how to explain what is happening, the seriousness or lack of seriousness, so I have stayed silent. I don’t know how to say thank […]

Like a yo-yo

Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]

I’m goddamn f&%king miserable

I guess life is about expectations. If you set yourself up for success or failure by believing a certain outcome is imminent, if it doesn’t turn out how you anticipated you end up, well – disappointed. That’s why hope is such a dangerous thing. A beautiful thing, but a dangerous thing.  Usually when you start […]

Tippity, Tappity, Tap, Tap, Tap

There’s a certain rhythm to chronic pain. It vacillates in a certain way. A moment of relief. A rush of intensity. The booming of the throbbing. Dum. Dum. Dum. Dum. It fits with the ringing in my ears that comes in and out, gets louder and quieter depending on my surroundings. Swish, ring, swish, ring, […]

Just, please, give me a second.

The course of our lives change every moment. It sounds flippant to say that every last second of every day matters but it does. Every move we make has ripple effects in our lives and those of others. Our lives can change in a split second. My life has had various seconds where I saw […]