“Samira eats her words day”

Today was supposed to be the day that the doctors used their most accurate test to prove me wrong. I think it’s called a radio nuclear cisternogram. They were going to put a scary needle in my back, fill me with some kind of magical, radio-active, glow in the dark potion, and track my CSF. […]

Update for updates sake, so you’re not offended by my silence 

Since my last post many of you have reached out to me with you empathy, friendship and solidarity. I am so grateful. I am also lost for words. I don’t know how to explain what is happening, the seriousness or lack of seriousness, so I have stayed silent. I don’t know how to say thank […]

I’m goddamn f&%king miserable

I guess life is about expectations. If you set yourself up for success or failure by believing a certain outcome is imminent, if it doesn’t turn out how you anticipated you end up, well – disappointed. That’s why hope is such a dangerous thing. A beautiful thing, but a dangerous thing.  Usually when you start […]

Purely Informational

WARNING: If you’re here for a moment of uplift, inspiring lesson, casual amount of snark, hijinks or hilarity, a heart to heart convo between my typing and your computer screen, some love, some anger, some anything but apathy, you’re in the wrong place. This post is just an update. All 4 of you consistent readers […]

Update on a piss poor attitude and a desire to be a bit less haggard than I am

It was my first morning home from the hospital that I noticed it. A barely there drop of spinal fluid that shot out as I exhaled and sat up. “Aw crap” I thought to myself as I rummaged through the bag of undies and post-surgical instructions I had brought back from the hospital with me. […]