The confusing loneliness of the tediousness of illness
Today I get to hear the news I already know, a brain surgery sits on the horizon.
Tag Archives: csf leak
Update scmupdate
Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]
Love is a Verb
I may be sick, I may have pain, but I get to live in my life, however complicated that life may be. I get to do, I get to act, I get to love.
NegativityÂ
I try not to post when my posts will certainly be shrouded in negativity. I try to stay silent and stomach the worst of it on my own. I try not to burden others with the incessant failures and fissures in my life. I try to avoid the constant bad news. I do find myself […]
Listen to me
I wake up and I can feel the familiar drip down my throat. I remember this, I remember it from January, it feels the same just not as rapid. I swallow and decide to follow doctor’s orders. It’s nothing, you’re fine. I get up and trudge to the door to take the dogs out. I […]
Routine
I have a routine for bed time. I am not by nature an organized or regimented person, I don’t go to bed each night at the same time or wake up each morning with the sun. Each night and each morning are a careful balancing act of desires, expectations, and capabilities. Being “in-recovery” or “sick” […]
It’s happening
I woke up this morning with a pit in my stomach. It could have been the chicken pot pie I ate late last night but it felt more like that pit you get in your stomach before you have to do something big. Whether you are doing something good or bad, your body seems to […]
What happened
While social media tends to fill in the gaps of the big moments of our lives a few people have asked what happened so I figured I could write it down here for you. Here’s what happened: I woke up January 8th with a tinge of nausea and a not quite rested head. I washed […]
