Transition

I haven’t written here in a while. I just stopped wanting to write about my health because it became something that was too big for me to put into words. The constant fear that I kept at bay through a careful maintenance of “fight or flight” mode slowly started to collapse around me. I also […]

3 months

On Friday it will have been 3 months since what was hopefully the last of many brain surgeries.While I am quietly hopeful at the thought of resolution, it is not easy for me to inhabit my skin, this body, or this world with this new news. While everyone acknowledges alongside me that this will be […]

Routine

I have a routine for bed time. I am not by nature an organized or regimented person, I don’t go to bed each night at the same time or wake up each morning with the sun. Each night and each morning are a careful balancing act of desires, expectations, and capabilities. Being “in-recovery” or “sick” […]

I’m goddamn f&%king miserable

I guess life is about expectations. If you set yourself up for success or failure by believing a certain outcome is imminent, if it doesn’t turn out how you anticipated you end up, well – disappointed. That’s why hope is such a dangerous thing. A beautiful thing, but a dangerous thing.  Usually when you start […]

Update on a piss poor attitude and a desire to be a bit less haggard than I am

It was my first morning home from the hospital that I noticed it. A barely there drop of spinal fluid that shot out as I exhaled and sat up. “Aw crap” I thought to myself as I rummaged through the bag of undies and post-surgical instructions I had brought back from the hospital with me. […]

What’ll I do

There’s an episode of This American Life that features David Rakoff just before he died (here’s a link).  It was a live, theatrical version of the radio show in which the witty author, in his trademark biting tongue and powerful vocabulary, hilariously explained how he got by doing basic tasks after cancer took the use of […]

Withstand

It hurt. I woke up, throbbing, beating, pounding. “Is it my heart?” I wondered to myself as fatigue took over my limbs. “It’s in my head, I can feel my heartbeat in my head. Wait, no, can I?” I suddenly remembered where I was, who I am. “Ah fudge,” I thought to myself, “it’s all […]