The confusing loneliness of the tediousness of illness

Today I get to hear the news I already know, a brain surgery sits on the horizon.

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Why I write

The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]

In defense of trying: redefining thriving for a new body

I figured something out about myself. I’ve stayed, in a way, frozen to a version of myself. I used to think I was stuck in a protracted childhood because my tumor caused me to regress, but then I was like, mehhhhhhhh, that sounds like a lot of psychoanalytical pucky. But I knew I was stuck. […]

Like a yo-yo

Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]

Update on a piss poor attitude and a desire to be a bit less haggard than I am

It was my first morning home from the hospital that I noticed it. A barely there drop of spinal fluid that shot out as I exhaled and sat up. “Aw crap” I thought to myself as I rummaged through the bag of undies and post-surgical instructions I had brought back from the hospital with me. […]

Imagine

My thoughts are meandering, so bear that in mind, this post discreetly calls upon so much of what happens in my days without detail or justice to any one moment. It is often those things that we imagine that get us through those things that we are actually facing. For example when I have a […]

Live like you are living

There’s a phrase I have a conflicted relationship with. There’s songs about it, memes about it, stories about it, all with one motto: “Live like you were dying.” It’s some kind of an attempt to get us to live in the present, to conquer fear, to jump off that cliff we’ve never known we’ve always […]

I die on the table

I am not sure how often people of any age are forced to confront their mortality head on. Perhaps many people go through their entire lives never having to face the fact that until they die, they might die at any given moment. Many people have a vague awareness of it, but barring some catastrophic […]