On Friday it will have been 3 months since what was hopefully the last of many brain surgeries.While I am quietly hopeful at the thought of resolution, it is not easy for me to inhabit my skin, this body, or this world with this new news. While everyone acknowledges alongside me that this will be […]
I was doing great. I was upbeat, I was present, I think you could even have called me peppy for a bit. I was unphased by my 10th brain surgery (11th surgery overall). I was singing Jason Mraz’s “Everything is Sound,” and taking the uncertain and unwritten future as a reason to stay firmly in […]
Today I get to hear the news I already know, a brain surgery sits on the horizon.
The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]
Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]
Sometimes we remember, and sometimes we imagine, and sometimes those two things don’t feel that far apart. T-minus one month until brain surgery….
I may be sick, I may have pain, but I get to live in my life, however complicated that life may be. I get to do, I get to act, I get to love.
I try not to post when my posts will certainly be shrouded in negativity. I try to stay silent and stomach the worst of it on my own. I try not to burden others with the incessant failures and fissures in my life. I try to avoid the constant bad news. I do find myself […]
They say if you love someone let them go. I don’t know who they are, but they don’t tell you that if you let go of someone you love, or they let you go that it hurts like a stupid son-of-a-bitch. That’s what they don’t tell you. They also don’t tell you that they are assholes […]
Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]