On Friday it will have been 3 months since what was hopefully the last of many brain surgeries.While I am quietly hopeful at the thought of resolution, it is not easy for me to inhabit my skin, this body, or this world with this new news. While everyone acknowledges alongside me that this will be […]
As evidenced by the residual tears on my pillow and the fact that I am Google searching things Ernest Hemingway said while I lay in bed, today was a rough one. I woke up feeling lonely with a headache that would respond just enough to medication to be tolerable but not enough to let you […]
The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]
Sometimes we remember, and sometimes we imagine, and sometimes those two things don’t feel that far apart. T-minus one month until brain surgery….
I may be sick, I may have pain, but I get to live in my life, however complicated that life may be. I get to do, I get to act, I get to love.
Today was supposed to be the day that the doctors used their most accurate test to prove me wrong. I think it’s called a radio nuclear cisternogram. They were going to put a scary needle in my back, fill me with some kind of magical, radio-active, glow in the dark potion, and track my CSF. […]