The confusing loneliness of the tediousness of illness

Today I get to hear the news I already know, a brain surgery sits on the horizon.

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Why I write

The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]

Update scmupdate

Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]

I shouldn’t be doing this right now

I shouldn’t be sitting here writing this right now. I should not be sitting here ruminating on what is to come. I should be trudging away on final papers, grading and that dreaded dissertation. I shouldn’t be sitting here looking at the calendar and counting down the days to my next surgery. There’s ten by […]

Like a yo-yo

Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]

I’m goddamn f&%king miserable

I guess life is about expectations. If you set yourself up for success or failure by believing a certain outcome is imminent, if it doesn’t turn out how you anticipated you end up, well – disappointed. That’s why hope is such a dangerous thing. A beautiful thing, but a dangerous thing.  Usually when you start […]

Purely Informational

WARNING: If you’re here for a moment of uplift, inspiring lesson, casual amount of snark, hijinks or hilarity, a heart to heart convo between my typing and your computer screen, some love, some anger, some anything but apathy, you’re in the wrong place. This post is just an update. All 4 of you consistent readers […]

Withstand

It hurt. I woke up, throbbing, beating, pounding. “Is it my heart?” I wondered to myself as fatigue took over my limbs. “It’s in my head, I can feel my heartbeat in my head. Wait, no, can I?” I suddenly remembered where I was, who I am. “Ah fudge,” I thought to myself, “it’s all […]

Live like you are living

There’s a phrase I have a conflicted relationship with. There’s songs about it, memes about it, stories about it, all with one motto: “Live like you were dying.” It’s some kind of an attempt to get us to live in the present, to conquer fear, to jump off that cliff we’ve never known we’ve always […]