Muscle through

Im so goddamn tired of being tired. I’m so frustrated with “healing” or what no one in the medical profession let’s you know feels like stagnation alongside a quiet resignation of a new reality for yourself. A sad reality,where everyone worries but no one knows what to do, including me. It’s interesting to realize how […]

Life was hard today 

As evidenced by the residual tears on my pillow and the fact that I am Google searching things Ernest Hemingway said while I lay in bed, today was a rough one. I woke up feeling lonely with a headache that would respond just enough to medication to be tolerable but not enough to let you […]

Number Ten

I was doing great. I was upbeat, I was present, I think you could even have called me peppy for a bit. I was unphased by my 10th brain surgery (11th surgery overall). I was singing Jason Mraz’s “Everything is Sound,” and taking the uncertain and unwritten future as a reason to stay firmly in […]

Why I write

The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]

Update scmupdate

Many, many people showed up for me during my recent surgery, through messages, sharing joy, holding my hand, or sending love in various ways. Before I answer any nagging questions that tear at your gut or mine, I feel compelled to say thank you. From the very depths of my heart, so many have done […]

I shouldn’t be doing this right now

I shouldn’t be sitting here writing this right now. I should not be sitting here ruminating on what is to come. I should be trudging away on final papers, grading and that dreaded dissertation. I shouldn’t be sitting here looking at the calendar and counting down the days to my next surgery. There’s ten by […]

Routine

I have a routine for bed time. I am not by nature an organized or regimented person, I don’t go to bed each night at the same time or wake up each morning with the sun. Each night and each morning are a careful balancing act of desires, expectations, and capabilities. Being “in-recovery” or “sick” […]