I get gamma knife radio surgery tomorrow. Stereotactic something or another. On the tumor that said “stable” on report after report. But then, a conscientious neurosurgeon, dare I say, a friend, cared enough to look, then look again. “I hate to say this, but it looks…fuller,” he said and he leaned back and pulled his […]
This morning as I let my body sink into savasana after my yoga practice, I played a song by Brandi Carlile. Her powerful voice gently lulled me into the earth, and as I felt my body sink into a haphazard relaxation she sang, “I’m beginning to feel the years, but I’m going to be okay, […]
I haven’t written here in a while. I just stopped wanting to write about my health because it became something that was too big for me to put into words. The constant fear that I kept at bay through a careful maintenance of “fight or flight” mode slowly started to collapse around me. I also […]
On Friday it will have been 3 months since what was hopefully the last of many brain surgeries.While I am quietly hopeful at the thought of resolution, it is not easy for me to inhabit my skin, this body, or this world with this new news. While everyone acknowledges alongside me that this will be […]
Im so goddamn tired of being tired. I’m so frustrated with “healing” or what no one in the medical profession let’s you know feels like stagnation alongside a quiet resignation of a new reality for yourself. A sad reality,where everyone worries but no one knows what to do, including me. It’s interesting to realize how […]
I don’t like to be redundant, so I won’t describe my pain again. But, I don’t know if it is too redundant to say that I am in it, pain, that is. I spent the last 40 minutes wailing like a baby and fumbling with drug bottles. You see, I had a rough night, I […]
For the last hour I have endured severe pain. It is what I would describe to doctors as a ten out of ten. It makes me naseous and steals my spirit. It’s the saddest face on what I term the “happy face scale” that nurses give you when you’re laid up in the hospital. I […]
Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]
My thoughts are meandering, so bear that in mind, this post discreetly calls upon so much of what happens in my days without detail or justice to any one moment. It is often those things that we imagine that get us through those things that we are actually facing. For example when I have a […]
After my first surgery, the first night in the hospital my mom stayed by my side, jumping for every moan and groan. In that moment she taught me what it is to be a mother. To be relentless for her child. I saw the same gusto in my dad as he asked questions and pored […]
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