I get gamma knife radio surgery tomorrow. Stereotactic something or another. On the tumor that said “stable” on report after report. But then, a conscientious neurosurgeon, dare I say, a friend, cared enough to look, then look again. “I hate to say this, but it looks…fuller,” he said and he leaned back and pulled his […]
Hey, you. Remember me? I know, it’s been… a minute. Some things have changed, good things mostly, some hard things. I’ve lost people, and found some others. I’m a mom now, that’s pretty cool. Pretty all consuming and exhausting but oxygen providing. She is sustenance and love wrapped up in chubby little arms and a […]
My dogs were recently hit by a car. They escaped from a dog sitter who stopped paying attention and they got badly hurt. One of them needed her leg amputated. In the days and weeks leading up to her surgery I agonized over the decision to amputate. Were we taking away her chance at […]
I haven’t written here in a while. I just stopped wanting to write about my health because it became something that was too big for me to put into words. The constant fear that I kept at bay through a careful maintenance of “fight or flight” mode slowly started to collapse around me. I also […]
On Friday it will have been 3 months since what was hopefully the last of many brain surgeries.While I am quietly hopeful at the thought of resolution, it is not easy for me to inhabit my skin, this body, or this world with this new news. While everyone acknowledges alongside me that this will be […]
Anxiety and fear, they can be gripping. They cause a weight that makes the act of getting up off the couch an act of force and willpower that is hard to muster. My day started with worry for someone I love very much. Then it shifted to frustration at an unfair world. Then it shifted to […]
Im so goddamn tired of being tired. I’m so frustrated with “healing” or what no one in the medical profession let’s you know feels like stagnation alongside a quiet resignation of a new reality for yourself. A sad reality,where everyone worries but no one knows what to do, including me. It’s interesting to realize how […]
I was doing great. I was upbeat, I was present, I think you could even have called me peppy for a bit. I was unphased by my 10th brain surgery (11th surgery overall). I was singing Jason Mraz’s “Everything is Sound,” and taking the uncertain and unwritten future as a reason to stay firmly in […]
Today I get to hear the news I already know, a brain surgery sits on the horizon.
The night before my official diagnosis with an acoustic neuroma I had an idea of what I had based on my sister (a doctor) and I’s amateur analysis of the MRI over the phone. She graciously told me what I had and told me not to worry and wait for the doctor to advise. I […]
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