Update for updates sake, so you’re not offended by my silenceĀ 

Since my last post many of you have reached out to me with you empathy, friendship and solidarity. I am so grateful. I am also lost for words. I don’t know how to explain what is happening, the seriousness or lack of seriousness, so I have stayed silent. I don’t know how to say thank […]

Like a yo-yo

Sometimes I feel ok. Those times I think, alright if it is spinal fluid seeping out of your nose all day long, you’ll figure it out. Sometimes I feel sick, physically and that makes me sad and that’s not great but I medicate, literally, and then I feel ok. But mostly I feel sad. I […]

I’m goddamn f&%king miserable

I guess life is about expectations. If you set yourself up for success or failure by believing a certain outcome is imminent, if it doesn’t turn out how you anticipated you end up, well – disappointed. That’s why hope is such a dangerous thing. A beautiful thing, but a dangerous thing.  Usually when you start […]

Update on a piss poor attitude and a desire to be a bit less haggard than I am

It was my first morning home from the hospital that I noticed it. A barely there drop of spinal fluid that shot out as I exhaled and sat up. “Aw crap” I thought to myself as I rummaged through the bag of undies and post-surgical instructions I had brought back from the hospital with me. […]

What is there to say

For a while I was writing every day, exploring the inner most avenues of my heart as I navigated a path towards healing (whatever that means). It was something that kept me going, to write it down was to begin to deal with the ongoing ordeal of living with Herbert, or Flo, or really, any […]

Imagine

My thoughts are meandering, so bear that in mind, this post discreetly calls upon so much of what happens in my days without detail or justice to any one moment. It is often those things that we imagine that get us through those things that we are actually facing. For example when I have a […]

What’ll I do

There’s an episode of This American Life that features David Rakoff just before he died (here’s a link).  It was a live, theatrical version of the radio show in which the witty author, in his trademark biting tongue and powerful vocabulary, hilariously explained how he got by doing basic tasks after cancer took the use of […]