Tomorrow it will be one month until my surgery. This time next month I’ll be pretending to relax in a house somewhere in Phoenix while everyone nervously flutters around me. I will be in a panic. Today, I am already likely panicking. Or maybe not. I spent most of last night and today sick to […]
I recently joined the Acoustic Neuroma Association as a member in order to gain access to their community because I had heard it had helped many people. Unfortunately I had some trouble accessing their site so in some of my more needy moments, I began looking elsewhere for a virtual brain tumor community to share […]
I’ve been writing for the last few months for 3 reasons. The first was to put words to the confusion, hope, patience, impatience, and struggle I had pouring endlessly out of my heart. The second, to inform those around me about what was going on, to not have to worry who was in or out […]
So remember those tumor moments? Well, I do. How do I remember? Well the thing is I think they are becoming more frequent. Or maybe, as some are pushing me to believe, I am just more in tune to them. Either way, shit is happening all up and down my world. I am like one […]
I thought, upon writing my last post, that the next post I wrote would be some kind of optimistic testament to the gestures I have taken to be in control of my destiny. I got a tattoo, I got a permanent representation of this journey on my body, as a reminder to let laughter flow […]
Very few people understand my relationship with my family, and very few people have made it to the category of family for me that are outside of my blood relatives, but for those of you that have, I hope that you have begun to understand the power of family, especially when it is like mine. […]
I hadn’t realized how overwhelming my trip to Arizona had been until I came back and began to process it. The reality of a diagnoses and what that means to an individual are hard things to understand. The reality of being differently abled than what you are accustomed to is scary, even if the consequences […]
I am totally over this brain tumor. TOTALLY. OVER. IT. Nuff said
So recently things have just been plain hard. My spirits were relatively low and I had some pretty rough moments. Last week I flew to Poughkeepsie, NY for a conference. Before going there I had come down with a pretty nasty cold and couldn’t really feel my face because my sinuses wanted to explode. Between […]
I have a ton of work to be doing. I mean, a ton. Like if it was not inside this computer it would probably weigh 2000 pounds. See, literally, a ton. And as I started writing this last night I was not doing any of it. I wasn’t even doing this, I had stopped blogging […]
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